Where My Crohnie's At?!

neurosciencestuff:

Neurosurgeons successfully implant 3D printed skull
A 22-year-old woman from the Netherlands who suffers from a chronic bone disorder — which has increased the thickness of her skull from 1.5cm to 5cm, causing reduced eyesight and severe headaches — has had the top section of her skull removed and replaced with a 3D printed implant.
The operation was performed by a team of neurosurgeons at the University Medical Centre Utrecht and the university claims this is this first instance of a successful 3D printed cranium that has not been rejected by the patient.
The operation, which took 23 hours, was led by Dr Bon Verweij. The patient’s skull was so thick, that had the operation not been performed, serious brain damage or death may have occurred in the near future.
Read more
neurosciencestuff:

Neurosurgeons successfully implant 3D printed skull
A 22-year-old woman from the Netherlands who suffers from a chronic bone disorder — which has increased the thickness of her skull from 1.5cm to 5cm, causing reduced eyesight and severe headaches — has had the top section of her skull removed and replaced with a 3D printed implant.
The operation was performed by a team of neurosurgeons at the University Medical Centre Utrecht and the university claims this is this first instance of a successful 3D printed cranium that has not been rejected by the patient.
The operation, which took 23 hours, was led by Dr Bon Verweij. The patient’s skull was so thick, that had the operation not been performed, serious brain damage or death may have occurred in the near future.
Read more

neurosciencestuff:

Neurosurgeons successfully implant 3D printed skull

A 22-year-old woman from the Netherlands who suffers from a chronic bone disorder — which has increased the thickness of her skull from 1.5cm to 5cm, causing reduced eyesight and severe headaches — has had the top section of her skull removed and replaced with a 3D printed implant.

The operation was performed by a team of neurosurgeons at the University Medical Centre Utrecht and the university claims this is this first instance of a successful 3D printed cranium that has not been rejected by the patient.

The operation, which took 23 hours, was led by Dr Bon Verweij. The patient’s skull was so thick, that had the operation not been performed, serious brain damage or death may have occurred in the near future.

Read more


I am looking for a roommate! Who wants to go on an awesome retreat with fellow #crohnies like me?

I know.  I tried to make this sound glamourous but as you can see Crohnie Retreat doesn’t sound that cool when you try to turn into a snappy invite within 140 characters.

One of my favorite Crohn’s disease advocates and e-friends, Sarah Choueiry created an amazing retreat for fellow fighters of Crohns and Ulcerative Colitis aka the disease that likes to remind you that its still there every once in a freaking while.

I am absolutely amped up and prepared to go but I really would like a roommate.  

Here are the deets. Feel free to check out her website, The Crohn’s Journey Foundation (dot org), for more details.  

via http://thecrohnsjourneyfoundation.org/tcjfretreats/ojai-retreat/

We are so excited to announce that our first week­end retreat on Sep­tem­ber 13–15 (orig­i­nally May 17–19 but due to sched­ul­ing con­flicts post­posed to Sep­tem­ber) will be held at the Ojai Retreat, an Ojai Val­ley B&B Inn and Retreat cen­ter in Cal­i­for­nia. The Ojai Retreat is a haven of beauty and tran­quil­ity nes­tled on a five-acre hill­top. The Ojai Retreat offers a main house and cot­tages with twelve com­pletely ren­o­vated guest rooms. The Ojai Retreat has received the Eco-Excellence Award and onTrip Advi­sor has 5/5 stars, 321 reviews.

Our Crohn’s Jour­ney retreat is cre­ated to pro­vide a haven for those who are diag­nosed with Crohn’s Dis­ease and Ulcer­a­tive Col­i­tis. We encour­age you to bring a sig­nif­i­cant other to expe­ri­ence this amaz­ing week­end along­side of you. We take the best of east­ern and west­ern med­i­cine and com­bine it into a week­end where you will par­tic­i­pate in the following:

  • Med­i­ta­tion and Yoga (led by licensed yoga teacher, Molly O’Leary)
  • Cook­ing Class (focus­ing on teach­ing tips/techniques to make foods more belly friendly: Led by chef Robin Goldstein)
  • The newest medication/treatments for IBD (led by ULCA IBD clin­i­cal nurse, Eliz­a­beth Inserra)
  • Alter­na­tive treat­ment for IBD symp­toms, as well as tips to sus­tain remis­sion (led by licensed acupunc­tur­ist, Tamara Zum­mallen)  
  • Sup­port group focus­ing on emo­tions and thoughts that come with hav­ing Crohn’s Dis­ease (led by a licensed health coach)
  • Acupunc­ture (25 min­utes of con­sul­ta­tion and acupunc­ture to all retreaters by licensed acupunc­tur­ist, Tamara Zum­mallen)
  • Per­sonal Trainer (30 min­utes of con­sul­ta­tion and/or work out with per­sonal trainer Maya Abu-Mansour)

For those of you look­ing for extra lov­ing for your bod­ies, mas­sages will be avail­able at a nom­i­nal cost. You will also have access to the beau­ti­ful nature walks and hikes that are avail­able for you to use dur­ing your free time.

Dur­ing your stay, you will be pro­vided meals that are spe­cific to your needs and diet. You will begin the Crohn’s Jour­ney Retreat with a binder that is half full, and leave hav­ing filled it with all the knowl­edge you have acquired dur­ing your retreat.

The cost of this 2 night 3 day, all inclu­sive retreat, which included food, activ­i­ties and speak­ers comes to:
(all rooms include a small refrig­er­a­tors and microwaves, pri­vate bath­room and towels/bathroom neces­si­ties unless spec­i­fied oth­er­wise) NEW DISCOUNTED PRICES

  • $659 for sin­gle occu­pancy: 1 queen bed, 1 bath­room Pri­vate Cottage
  • $780 for dou­ble occu­pancy: 1 queen bed, 1 bath­room Pri­vate Cot­tage ($390.00 per person)
  • $610 for sin­gle occu­pancy: 1 queen bed and shared bathroom
  • $736 dol­lars for dou­ble occu­pancy: 1 queen bed and shared bath­room ($368.00 per per­son)

COME FOR JUST THE DAY: If you would like to attend the talks and meals pro­vided at the retreat but pre­fer to not sleep over, here is the break­down of what it would cost to participate:

  • $60: Par­tic­i­pate in Fri­day nights cook­ing class and dinner.
  • $100: Sat­ur­day day retreat (includes: yoga, break­fast, GI speaker, lunch, Holis­tic speaker, nature walks, Licensed ther­a­pist led sup­port group, din­ner and meditation)
  • If you would only like to par­tic­i­pate in a cou­ple of the activ­i­ties, please email me for pricing.

Come join us and be a part of a group of peo­ple that I call my Crohnie Fam­ily and even if you don’t have Crohn’s, you’re still related and encour­aged to join. This will be a place to gain knowl­edge and cre­ate bonds that will last a lifetime.

Only 9 rooms are avail­able, so space is limited.

For more infor­ma­tion or if you have ques­tions per­tain­ing to the retreat, please email me at sarah@thecrohnsjourneyfoundation.org.

Hit me on twitter @msmarypryor if you are interested.  Flights are getting expensive soooo let’s huddle up and get moving!

Respect,

M


Please take this survey on Crohn’s and UC Awareness and your answers provide a donation to charity!

WEGO Health is conducting a survey of the online Crohn’s Disease and Ulcerative Colitis communities online and has asked me to share the survey to make sure we get as many patients and caregivers involved as possible.  The survey only takes about 10 minutes and you can take it here: https://www.surveymonkey.com/s/G2K6SCW. As a thank you for sharing the survey, WEGO Health will be making a donation to me or a charity of my choice.